Study on the correlation between sarcoidosis patients' disease cognition and their quality of life
结节病患者的疾病认知与其生活质量的相关性研究

摘要

目的 探析结节病患者的生活质量与自身疾病认识之间的相关性。方法 便利选取我院收治的52例结节病患者作为主要研究对象，研究开展时间为2019年1月-2019年12月。使用问卷调查的方法了解患者的疾病认知情况。在实施问卷调查前，首先对调查问卷进行完善，对自填式标准化慢性呼吸问卷、健康调查问卷及疾病认知问卷进行改良后，发放到患者手中。根据收集到的问卷结果，对疾病认知与生活质量的相关性进行分析。结果 经过问卷调查分析得知，在结节病患者的临床症状表现中，呼吸困难和疲乏较为常见，通过问卷分析总结出患者对疾病的认知和生活质量之间是负相关关系。结论 研究表明，为了能够给结节病患者提供有效的干预方法，应该提前对患者的疾病认知情况进行了解，只有这样才能够保证干预措施的有效性。

Abstract

Objective: To analyze the correlation between the quality of life of sarcoidosis patients and their own disease knowledge.
Methods: It is convenient to select 52 patients with sarcoidosis admitted to our hospital as the main research object, and the study will be carried out from January 2019 to December 2019. Use questionnaire survey methods to understand the patient's disease awareness. Before implementing the questionnaire survey, the questionnaire was first improved, and the self-filled standardized chronic respiratory questionnaire, health questionnaire and disease awareness questionnaire were modified and distributed to patients. Based on the collected questionnaire results, the correlation between disease cognition and quality of life was analyzed.
Results: According to the questionnaire survey analysis, in the clinical symptoms of sarcoidosis patients, dyspnea and fatigue are more common. The questionnaire analysis concluded that the patient's cognition of the disease and the quality of life are negatively correlated.
Conclusion  : Studies have shown that in order to provide effective intervention methods for patients with sarcoidosis, the patient's disease awareness should be understood in advance, and only then the effectiveness of intervention measures can be guaranteed.