International Journal of Nursing Research
International Journal of Nursing Research. 2026; 8: (9) ; 10.12208/j.ijnr.20260459 .
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广东食品药品职业学院护理学院 广东广州
*通讯作者： 潘胜茂,单位：广东食品药品职业学院护理学院 广东广州; ；
目的 探讨孤独症儿童主要照顾者连带病耻感对生活质量的影响及社会支持的中介作用。方法 采用方便抽样法选取广州2家康复机构181名孤独症儿童主要照顾者为研究对象，运用一般资料调查表、连带病耻感量表（ASS）、社会支持量表（SSRS）和世界卫生组织生命质量测定量表简表（W HOQOL-BREF）进行调查。结果 孤独症儿童主要照顾者ASS得分为（48.58±10.43）分，存在中等偏上的连带病耻感，WHOQOL-BREF得分为（77.83±12.81）分，处于中等水平；照顾者SSRS得分为（35.24±5.07）分，为中等水平。Pearson相关分析结果显示，照顾者连带病耻感与生活质量呈负相关（r=-0.525，P<0.01），与社会支持呈负相关（r=-0.176，P<0.05）。社会支持与生活质量呈正相关（r=0.221，P<0.01），中介效应分析表明，社会支持是照顾者连带病耻感与生活质量的中介变量，总效应值为-0.5006，直接效应值为-0.4625，中介效应值为-0.0381，中介效应占总效应的7.61%。结论 孤独症儿童主要照顾者的连带病耻感会对其生活质量产生影响，社会支持在这一影响过程中起中介作用。医务人员应重视社会支持系统的构建，通过提供针对性的支持措施，缓解照顾者的连带病耻感，进而提升其生活质量。
Objective To explore the influence of associated stigma on quality of life among primary caregivers of children with autism and the mediation effect of social support in this relationship. Methods A total of 181 primary caregivers of children with autism from a rehabilitation institution in Guangzhou were selected using convenient sampling. They were surveyed using a general information questionnaire, the Associated Stigma Scale (ASS), the Social Support Rating Scale (SSRS), and the World Health Organization Quality of Life-BREF (WHOQOL-BREF). Results The average ASS score of the primary caregivers was (48.58±10.43), indicating a moderately high level of associated stigma. The average WHOQOL-BREF score of the caregivers was (77.83±12.81), which was at a moderate level. The average SSRS score of the caregivers was (35.24±5.07). Pearson correlation analysis showed that caregivers’ associated stigma was negatively correlated with quality of life (r=-0.525, P<0.01) and social support (r=-0.176, P<0.05). Social support was positively correlated with quality of life (r=0.221, P<0.01). Social support played a mediating role in the relationship between associated stigma and quality of life, with a total effect value of -0.5006, a direct effect value of -0.4625, a mediating effect value of -0.0381, and the mediating effect accounting for 7.61% of the total effect. Conclusion Associated stigma among primary caregivers of children with autism affects their quality of life, and social support plays a mediating role in this process. Medical staff should attach importance to the construction of social support systems and provide targeted support measures to alleviate caregivers’ associated stigma and thereby improve their quality of life.
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