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国际护理学研究

International Journal of Nursing Research

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International Journal of Nursing Research. 2026; 8: (2) ; 10.12208/j.ijnr.20260075 .

The impact of feedback-based health education on ONS-related knowledge and quality of life in children with crohn's disease
回授法教育模式对克罗恩病患儿ONS相关知识水平及生活质量的影响

作者: 吴丽君1, 邹瑜1 *, 肖海荣2, 王朝霞1, 蔡华波1, 林燕鸿1, 张元雪1

1 深圳市儿童医院消化内科 广东深圳

2 深圳市儿童医院临床营养科 广东深圳

*通讯作者: 邹瑜,单位: 深圳市儿童医院消化内科 广东深圳;

引用本文: 吴丽君, 邹瑜, 肖海荣, 王朝霞, 蔡华波, 林燕鸿, 张元雪 回授法教育模式对克罗恩病患儿ONS相关知识水平及生活质量的影响[J]. 国际护理学研究, 2026; 8: (2) : 73-77.
Published: 2026/2/28 9:30:25

摘要

目的 克罗恩病患儿普遍存在营养不良,口服营养补充(ONS)是关键治疗手段,但患儿依从性低、认知不足。为提高健康教育效果,本研究探索回授法模式的应用价值。方法 采用随机对照设计,对试验组实施基于回授法的系统化健康教育,包括院内讲授与出院后每周远程反馈;对照组接受常规健康教育。两组均接受6次集中教育,随访12周,采用自设问卷与生活质量量表进行评估,同时监测体重、BMI,计算体重/年龄Z评分和身高/年龄Z评分。结果 干预后,试验组ONS相关知识水平各项评分及总分均高于对照组(P<0.05)。干预后,试验组生活质量各项水平评分及总分均高于对照组(P<0.05)。结论 回授法能有效提升患儿及家长对ONS的认知与执行能力,进而改善营养结局与生活质量,值得在儿科慢性病管理中推广。

关键词: 回授法;教育;克罗恩病;口服肠内营养;生活质量

Abstract

Objective Malnutrition is highly prevalent in pediatric patients with Crohn’s disease. Oral nutritional supplementation (ONS) represents a core therapeutic strategy, but its clinical efficacy is often limited by poor adherence and insufficient disease-related knowledge in children and their caregivers. This study aimed to evaluate the effectiveness of the teach-back method in enhancing health education for this population.
Methods A randomized controlled trial was conducted. The intervention group received standardized health education using the teach-back method, consisting of in-hospital training and weekly remote follow-up after discharge. The control group was provided with conventional health education. Both groups underwent six sessions of education and 12 weeks of follow-up. Outcomes were assessed using a self-designed knowledge questionnaire, a quality-of-life scale, and anthropometric measurements including body weight, BMI, weight-for-age Z-score, and height-for-age Z-score.
Results Compared with the control group, the intervention group exhibited significantly higher scores in all dimensions and the total score of ONS-related knowledge (P<0.05), as well as significantly higher scores in all subscales and the total score of quality of life (P<0.05) after intervention.
Conclusion   The teach-back method effectively improves ONS-related knowledge, practical compliance, nutritional status and quality of life among pediatric patients with Crohn’s disease and their caregivers. It is a feasible and effective educational strategy worthy of widespread application in the long-term management of pediatric chronic gastrointestinal diseases.

Key words: Feedback method; Education; Crohn’s disease; Oral enteral nutrition; Quality of life

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