Qualitative study of supportive care needs in maintenance hemodialysis patients
维持性血液透析患者支持性照护需求的质性研究

摘要

目的 深入了解维持性血液透析患者支持性照护需求，为制订有针对性的干预策略提供参考。方法 采用现象学研究方法，于2023年4月—2024年4月在湛江市某三级甲等医院血液透析中心对10例维持性血液透析患者进行半结构化深度访谈，使用Colaizzi 7 步分析法，运用Nvivo软件进行数据的收集、整理及主题提炼。结果 共提炼出 4 个主题，分别为疾病症状管理需求，疾病信息管理需求，情感与心理支持，回归社会角色。结论 维持性血液透析患者的躯体困扰和负担感受同时存在。医护人员应加强疾病症状管理相关知识的健康教育，重视心理疏导及加强社会支持，提供针对性地治疗与照护，以满足维持性血液透析患者需求，提高其生活质量。

Abstract

Objective To investigate the supportive care needs of maintenance hemodialysis patients and provide reference for formulating targeted intervention strategies.
Methods A phenomenological research method was used to conduct semi-structured in-depth interviews with 10 patients with maintenance hemodialysis in the hemodialysis center of a third-level A hospital in Zhanjiang City from April 2023 to April 2024. Colaizzi 7-step analysis method was used, and Nvivo software was used to collect, organize and refine the data.
Results A total of 4 themes were extracted, which were the needs of disease symptom management, the needs of disease information management, emotional and psychological support, and the return to social roles.
Conclusion   The patients with maintenance hemodialysis have both physical distress and burden feeling. In order to meet the needs of patients with maintenance hemodialysis and improve their quality of life, medical staff should strengthen health education on disease symptom management, pay attention to psychological counseling and strengthen social support, and provide targeted treatment and care.